I Need Information About Trisomy 13/Patau Syndrome

I’m thinking about writing a story about a boy with Trisomy 13. Although my little brother had it, he didn’t live long enough for me to know what it’s like to live with it. If you have any advice, please tell me.

I know the basics, like how it happens and what it is and stuff, but I don’t know what it is like to live with Trisomy 13. If you know (of) anyone with Trisomy 13, I’d love to talk to them.

Thanks!

Now I feel like the only one who’s ever heard of Trisomy 13.

I can offer you the scientific info behind it (genetics) but I don’t have any anecdotal information to give :frowning_face: your best bet is to try watching different documentaries

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